Happy Birthday N

Today N is 12 years old. It was about 1 hour ago, 12 years ago, that my life changed in a dramatic way. I did not know it, at the time, that the birth of this child would change me in ways I could never have imagined. Every child does that? Well, yes, but there are changes, and there are CHANGES!

N’s birthday has always been bittersweet. Usually more bitter than sweet. In spite of trying to stay in the moment, I have inevitably been sucked back into memories: and in the process I have found myself re-living some of the mostly difficult times we have experienced together. My memories are not all bad, but they start that way, because that is what happened. They follow a progression, from his infant illness, hospitalization, surgery, failure to meet developmental milestones, loss of developmental milestones, regression, worst case scenarios, autism, ramifications of autism, depression, fear, losing hope, finding things unexpected; finding connection, communication, acceptance, and love. It is like travelling along a road that descends into a valley filled with fog, and then slowly, fearfully, carefully, finding the road to travel upward and outward to where there is visibility.

This birthday – I am so glad to say that I have left that valley. I don’t care if he did not want to open his presents. They are still sitting wrapped on the table. Maybe I will just put them under the tree for Christmas! It does not matter that he was afraid of the birthday cake, or that it took him so many tries to blow out the candles, or that he did not eat the piece of cake that I cut for him but instead ate the icing off the rest of the cake. It is his birthday, it is his birthday cake! It does not matter that he was more interested in sticking to his routine than having a celebration! Today I am glad that he came into my life and I celebrate that gift with all who are able to understand.

Happy 12th Birthday

N did not eat his piece, he ate everybody else’s icing

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About lifewithautistickid

I am a Chartered Professional Accountant (CPA), with an MBA and BA. I have been fortunate to have had an extraordinary life with an autistic kid. I have learned so much from him about people and life in general. I want to make a difference by sharing my extraordinary experiences. Raising a son with severe autism and developmental disability has made me realize how we who are "normal" do not understand "disability". Instead of trying to "fix" people like my son by burying them in the community, I would like to see a society that respects and honors them for who they are. The potential is endless, in a world that can celebrate with sincerity, the dignity of the individual. Love and blessings to people of all "disability" . That includes you and me!
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One Response to Happy Birthday N

  1. Debra Archer says:

    Happy Birthday Nick.
    Thanks for sharing your story Judy, your journeys with us. I am happy for you that today was not so much about reflecting back on the stressful ,sad, frightening, challenges, and judgement that you have lived with over the years but that today could simply be about Nick and his birthday and how it all played out did not matter. I hope you loved the icing Nick .

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